Marge and Jim Shively of Los Altos have steadfastly continued their fight against a disease that claimed the life of their granddaughter nearly 15 years ago.
They’re still raising money for and participating in the annual Walk-n-Roll for SMA, an event their daughter, Linda, started 14 years ago. Linda gave birth to Jessica, who was diagnosed at three months with the deadly and incurable Spinal Muscular Atrophy. It remains the No. 1 cause of death in infants, affecting a child’s ability to crawl, sit, walk, swallow and breathe.