Mon04272015

News

LAH resident killed in cycling accident

LAH resident killed in cycling accident

A longtime Los Altos Hills resident and philanthropist struck by a bicyclist Monday (April 20) while walking along Page Mill Road has died from the injuries she sustained.

Kathryn Green, 61, died a day after the accident, according to the Santa Clar...

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Schools

LASD Junior Olympics scheduled Saturday

LASD Junior Olympics scheduled Saturday


Town Crier File Photo
The Los Altos School District Junior Olympics are slated Saturday at Mountain View High School. District officials say the opening ceremonies, above, are always memorable.

Los Altos School District fourth- through sixth-grader...

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Community

Altruism, adventure in Africa: Los Altos couple relates experiences in new book

Altruism, adventure in Africa: Los Altos couple relates experiences in new book


Courtesy of Wendy Walleigh
Rick and Wendy Walleigh spent a year and a half in Swaziland and Kenya.

Los Altos residents Rick and Wendy Walleigh experienced long, successful high-tech careers. But retirement? No, it was time for an encore.

Leavin...

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Sports

Workout warriors

Workout warriors


Megan V. Winslow/Town Crier
Los Altos High gymnast Jessica Nelson soars by coach Youlee Lee during practice last week. Lee is a 2005 Los Altos High grad.

Some coaches would like to see their athletes work harder. Youlee Lee has the opposite problem ...

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Comment

Ending the debate: No Shoes, Please

In a general sense, everything is up for debate with me: What do I cook for dinner? Did I do the right thing? What color paint for the bedroom? Do I really want to go? Has the team improved? What difference does it make? Should I give him a call? Is...

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Special Sections

Fitness focus: No holds barred for Los Altos sisters

Fitness focus: No holds barred for Los Altos sisters


Photos Courtesy of Barre 3
Gillian Brotherson, kneeling at left, guides studio instructors through a workout at barre3 Los Altos.

Health is all about balance. That’s what two Los Altos natives learned as they navigated work, motherhood and welln...

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Business

Physical therapist brings business background to new Los Altos clinic

Physical therapist brings business background to new Los Altos clinic

Courtesy of Eliza Snow
Strive owner Robert Abrams, kneeling, runs a balance test.

With more than a dozen physical therapy clinics in Los Altos, one new business owner streamlined his approach in an effort to set his practice apart.

“I always wan...

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Books

People

CAPTAIN: CHARLES THOMAS MINOR

CAPTAIN: CHARLES THOMAS MINOR

Age 96

December 7, 1918  - March 28, 2015 

Chuck passed away peacefully in the home he built in Los Altos surrounded by his beautiful wife of 69 years, Bonnie, his two sons and their spouses, David Minor & Caryn Joe Pulliam; Steve &...

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Travel

Cuba libre: Local residents join mad rush of travelers

Cuba libre: Local residents join mad rush of travelers


Natalie Elefant/Special to the Town Crier
Los Altos resident Natalie Elefant noted the vibrant street performances as a traveler in Cuba.

The U.S. restored diplomatic relations with Cuba late last year, enabling Americans to import $100 worth of cig...

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Stepping Out

Stage fright

Stage fright


Joyce Goldschmid/Special to the Town Crier
“The Addams Family” stars, from left, Betsy Kruse Craig (as Morticia), Joey McDaniel (Uncle Fester) and Doug Santana (Gomez).

The Palo Alto Players production of “The Addams Family”...

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Spiritual Life

Magazine

Food for thought: Hidden Villa programs offer teens training in sustainability on the farm

Food for thought: Hidden Villa programs offer teens training in sustainability on the farm


/Town Crier It’s not all cute and cuddly for teens participating in the eight-week Animal Husbandry Apprenticeship program at Hidden Villa in Los Altos Hills. Mia Mosing of Palo Alto, left, and Sophia Jackson of Los Altos clean the pigpens – one of...

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Inside Mountain View

Up to the challenge: Local leaders unite to help at-risk youth

Up to the challenge: Local leaders unite to help at-risk youth


Courtesy of Challenge Team
Jeanette Freiberg, bottom of pile, has fun with family members. The Challenge Team named Freiberg, a student at Mountain View High School, its 2015 Youth Champion.

There’s an ongoing joke among members of the Challenge...

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Rare cancer turns local resident into passionate advocate


Ellie Van Houtte/town crier
Los Altos resident Sarah Robinson, diagnosed with Stage 4 cancer two years ago, has organized a fundraiser to support Uterine Leiomyosarcoma research.

Sarah Robinson hopes to turn her medical battle into something positive for others.

The Los Altos resident, mother of two adult sons, has scheduled a fund- raiser for the LMSarcoma Direct Research Foundation 1-6 p.m. Sunday at Congregation Beth Am, 2670 Arastradero Road, Los Altos Hills.

Robinson, 54, told the Town Crier that the event is an extension of her advocacy on behalf of those afflicted with Uterine Leiomyosarcoma (ULMS), a rare tumor that develops in the muscular part of the uterus.

The Sarcoma Foundation of America (SFA) reports that approximately six out of 1 million U.S. women will be diagnosed annually with ULMS. Surgery is the primary therapy for those diagnosed with ULMS, which is resistant to chemotherapy, according to the SFA.

Grim diagnosis

Robinson’s efforts are the result of her own plight. Just shy of her 52nd birthday, she received a phone call that she had been diagnosed with Stage 4 cancer.

“It was the day before my birthday,” said Robinson, who until recently worked as an OB/GYN physician assistant. “It was kind of hard news to get over the phone.”

The “surprise diagnosis,” according to Robinson, came after she had undergone a laparoscopic hysterectomy, which included the use of a morcellator – a surgical tool that grinds up tissue with sharp rotating edges and extracts it from the body. Her doctors recommended the procedure after discovering that she had three uterine growths, one that enlarged from the size of an orange to a grapefruit within four weeks.

That large growth, originally diagnosed as a uterine fibroid, was a tumor. According to Robinson, the morcellator essentially “seeded” cancer cells throughout her body. Less than a year after the hysterectomy, Robinson said she now has three small growths on her lungs.

“It’s a very grim diagnosis. Just by doing (the morcellation) procedure, I’m now at Stage 4,” said Robinson, who declined to name the health-care provider who performed the surgery. “A lot of GYNs won’t see these throughout their entire careers –usually the average is zero to one (ULMS cases seen in a career).”

Robinson added that she asked – but was denied – the option of having a more traditional open surgery instead of the laparoscopy because her medical provider said she didn’t qualify for it.

“These types of things should be taken care of at a specialty center – at a sarcoma center,” said Robinson, who noted that 0.5 to 1 percent of women who undergo a hysterectomy due to a uterine fibroid end up with a ULMS diagnosis. “When you find a rare cancer, that’s where people should go.”

Looking ahead

Robinson conceded that while she’s still going through an “emotional process” in regard to her Stage 4 diagnosis, she’s also learned the importance of being her own health-care advocate. She found an entire community of those afflicted with ULMS through the Association of Cancer Online Resources (ACOR), where she met Sharon Anderson, originally diagnosed with the rare cancer in 2002.

A 55-year-old retired social worker, Anderson told the Town Crier that she knows Robinson’s story all too well. Although she also has been assessed at Stage 4 on the cancer scale, Anderson said she’s been tumor-free for seven years after she found a doctor through ACOR that treated her ULMS with a drug typically used by breast cancer patients. These days, Anderson advocates and offers a sympathetic ear to others afflicted with the disease.

“It’s extremely important to be your own advocate,” said Anderson, who often accompanies patients to medical appointments to help them understand their medical options and rights. “It’s not only for them, it’s for me, too. It’s my way of fighting for survival, too.”

Robinson said she doesn’t have time for what-if scenarios or negative thoughts. Instead, she chooses to focus her efforts on creating awareness and spreading knowledge of the rare disease to others. With this in mind, she noted that her advocacy work is “a continuation” of her 11-year career as a physician assistant.

“I love being a physician assistant and I love advocating for my patients,” said Robinson, who undergoes MRI exams and CT scans every three months to monitor the growths on her lungs. “It’s something that is very natural to me. It pains me to think that there are women who have to deal with this and, in some cases, also raise a family with little kids. That hurts. It hurts me a lot.”

Sunday’s fundraiser is one way Robinson hopes to make a difference. Guests attending the event – which includes a suggested $20 donation at the door – can enjoy food, wine and music while participating in a silent auction featuring certificates to restaurants, wine excursions and theater productions, among other packages.

“I’m trying to get out there and make a difference in this world,” she said. “I just don’t want this to happen to other women.”

For more information on Robinson’s fundraiser, call 245-1807.

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