Tue09302014

News

Meet the Santa Clara Valley Water District Board of Directors candidates

Meet the Santa Clara Valley Water District Board of Directors candidates

Two candidates have filed to run for the District 7 seat on the Santa Clara Valley Water District Board of Directors in the Nov. 4 election. The water district, established in 1929, oversees and protects water resources in Santa Clara County....

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Schools

New LAHS assistant principal focuses on school activities

New LAHS assistant principal focuses on school activities


Ellie Van Houtte/Town Crier
Suzanne Woolfolk, assistant principal at Los Altos High, teaches a leadership course for Associated Student Body leaders.

Suzanne Woolfolk – new assistant principal at Los Altos High School – said she is happy...

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Community

Petting zoo, car show highlight Chamber's annual Fall Festival

Petting zoo, car show highlight Chamber's annual Fall Festival


Courtesy of Los Altos Chamber of Commerce
The petting zoo is a highlight of the Los Altos Fall Festival. This year’s event is slated Oct. 4 and 5.

The Los Altos Chamber of Commerce has scheduled its 23rd annual Fall Festival 10 a.m. to 5 p.m. Oc...

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Sports

Burlingame bowls over Los Altos

Burlingame bowls over Los Altos


Ellie Van Houtte/Town Crier
Los Altos High halfback Sean Lanoza looks for running room against Burlingame in Saturday’s home opener.

The opening drive of Saturday’s game against Burlingame couldn’t have gone much better for the Los Altos High fo...

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Comment

Does Los Altos have a parking problem, or is it a symptom? : Other Voices

Yes, and yes. It appears that the downtown Los Altos parking problem is a symptom of the city’s “Sarah Winchester” approach to planning that instead of resulting in staircases to nowhere resulted in a hotel without parking required by code.(1)

From ...

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Special Sections

Los Altos landmark Four families later, Shoup House goes on the market

Los Altos landmark Four families later, Shoup House goes on the market


Courtesy of Matthew Anello
The Shoup House dining room, above, features original elements. The 100-year-old house on University Avenue earned a spot on the National Register of Historic Places, a nod to its legacy as the home of city founder Paul S...

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Business

Longtime banker readies for retirement

Longtime banker readies for retirement


Ellie Van Houtte/Town Crier
Joanne Kavalaris is retiring at the end of October after spending the past 25 years of her banking career in downtown Los Altos.

A longtime Los Altos banker is calling it a career in a few weeks.

Joanne Kavalaris, Bank o...

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Books

A woman's perspective on the Greatest Generation

A woman's perspective on the Greatest Generation


During World War II, Virgilia Short Witzel, a young mother and U.S. Navy officer’s wife, grappled on the home front in Menlo Park with wartime rationing, shortages and loneliness. During the ensuing Cold War, she experienced adventure and misadventur...

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People

VINCENT (TIM) MURPHY JR.

VINCENT (TIM) MURPHY JR.

July 27, 1953 – August 12, 2014

Native Los Altan died Medford, OR. Graduated Bellarmine Prep. Married Josephine Domino, 1950. Licensed Auto Mechanic, Private Pilot, skilled Computer Scientist. Tim “could fix anything”. Afflicted with cancer 2001. ...

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Travel

Taking a Turkey trek: Winging it during the World Cup

Taking a Turkey trek: Winging it during the World Cup


Rich Robertson/Special to the Town Crier
The sun sets over the Aegean Sea in Bodrum, Turkey, left.

Tours that whisk you from Istanbul to Bodrum in 11 days are as plentiful as souvenir hawkers in Turkey, but traveling from the Blue Mosque to Topkapi ...

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Stepping Out

Pear builds wonderful 'House'

Pear builds wonderful 'House'


J. Smith/Special to the Town Crier
Betsy Kruse Craig portrays Trish in the Pear Avenue Theatre production of “House,” which closes Oct. 5.

Mountain View’s Pear Avenue Theatre is staging an unusual theater-going experience – producing two plays...

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Spiritual Life

Magazine

Local events add color to autumn calendar

Local events add color to autumn calendar


Van Houtte/town crier Visitors make their way through the Children’s Alley.

As Los Altos’ signature Chinese Pistache trees exchange their summer green for vibrant hues of yellow, orange and red in the fall, an abundance of local events also add ...

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Rare cancer turns local resident into passionate advocate


Ellie Van Houtte/town crier
Los Altos resident Sarah Robinson, diagnosed with Stage 4 cancer two years ago, has organized a fundraiser to support Uterine Leiomyosarcoma research.

Sarah Robinson hopes to turn her medical battle into something positive for others.

The Los Altos resident, mother of two adult sons, has scheduled a fund- raiser for the LMSarcoma Direct Research Foundation 1-6 p.m. Sunday at Congregation Beth Am, 2670 Arastradero Road, Los Altos Hills.

Robinson, 54, told the Town Crier that the event is an extension of her advocacy on behalf of those afflicted with Uterine Leiomyosarcoma (ULMS), a rare tumor that develops in the muscular part of the uterus.

The Sarcoma Foundation of America (SFA) reports that approximately six out of 1 million U.S. women will be diagnosed annually with ULMS. Surgery is the primary therapy for those diagnosed with ULMS, which is resistant to chemotherapy, according to the SFA.

Grim diagnosis

Robinson’s efforts are the result of her own plight. Just shy of her 52nd birthday, she received a phone call that she had been diagnosed with Stage 4 cancer.

“It was the day before my birthday,” said Robinson, who until recently worked as an OB/GYN physician assistant. “It was kind of hard news to get over the phone.”

The “surprise diagnosis,” according to Robinson, came after she had undergone a laparoscopic hysterectomy, which included the use of a morcellator – a surgical tool that grinds up tissue with sharp rotating edges and extracts it from the body. Her doctors recommended the procedure after discovering that she had three uterine growths, one that enlarged from the size of an orange to a grapefruit within four weeks.

That large growth, originally diagnosed as a uterine fibroid, was a tumor. According to Robinson, the morcellator essentially “seeded” cancer cells throughout her body. Less than a year after the hysterectomy, Robinson said she now has three small growths on her lungs.

“It’s a very grim diagnosis. Just by doing (the morcellation) procedure, I’m now at Stage 4,” said Robinson, who declined to name the health-care provider who performed the surgery. “A lot of GYNs won’t see these throughout their entire careers –usually the average is zero to one (ULMS cases seen in a career).”

Robinson added that she asked – but was denied – the option of having a more traditional open surgery instead of the laparoscopy because her medical provider said she didn’t qualify for it.

“These types of things should be taken care of at a specialty center – at a sarcoma center,” said Robinson, who noted that 0.5 to 1 percent of women who undergo a hysterectomy due to a uterine fibroid end up with a ULMS diagnosis. “When you find a rare cancer, that’s where people should go.”

Looking ahead

Robinson conceded that while she’s still going through an “emotional process” in regard to her Stage 4 diagnosis, she’s also learned the importance of being her own health-care advocate. She found an entire community of those afflicted with ULMS through the Association of Cancer Online Resources (ACOR), where she met Sharon Anderson, originally diagnosed with the rare cancer in 2002.

A 55-year-old retired social worker, Anderson told the Town Crier that she knows Robinson’s story all too well. Although she also has been assessed at Stage 4 on the cancer scale, Anderson said she’s been tumor-free for seven years after she found a doctor through ACOR that treated her ULMS with a drug typically used by breast cancer patients. These days, Anderson advocates and offers a sympathetic ear to others afflicted with the disease.

“It’s extremely important to be your own advocate,” said Anderson, who often accompanies patients to medical appointments to help them understand their medical options and rights. “It’s not only for them, it’s for me, too. It’s my way of fighting for survival, too.”

Robinson said she doesn’t have time for what-if scenarios or negative thoughts. Instead, she chooses to focus her efforts on creating awareness and spreading knowledge of the rare disease to others. With this in mind, she noted that her advocacy work is “a continuation” of her 11-year career as a physician assistant.

“I love being a physician assistant and I love advocating for my patients,” said Robinson, who undergoes MRI exams and CT scans every three months to monitor the growths on her lungs. “It’s something that is very natural to me. It pains me to think that there are women who have to deal with this and, in some cases, also raise a family with little kids. That hurts. It hurts me a lot.”

Sunday’s fundraiser is one way Robinson hopes to make a difference. Guests attending the event – which includes a suggested $20 donation at the door – can enjoy food, wine and music while participating in a silent auction featuring certificates to restaurants, wine excursions and theater productions, among other packages.

“I’m trying to get out there and make a difference in this world,” she said. “I just don’t want this to happen to other women.”

For more information on Robinson’s fundraiser, call 245-1807.

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