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News

E. coli found in Los Altos water indicated breach, but only low risk

E. coli found in Los Altos water indicated breach, but only low risk


Courtesy of Microbe World
Colorized low-temperature electron micrograph of a cluster of E. coli bacteria

When E. coli and other bacteria were discovered in some Los Altos water last week, officials from the local water supplier, California Water...

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Schools

BCS hosts Stretch to Kindergarten program for underserved youth

BCS hosts Stretch to Kindergarten program for underserved youth


Traci Newell/Town Crier
The six-week, tuition-free Stretch to Kindergarten program, hosted at Bullis Charter School, serves children who have not attended preschool. A teacher leads children in singing about the parts of a butterfly, above.

Local un...

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Community

Google car painting project calls on artists

Google car painting project calls on artists


Google self-driving car

Already known as an innovator in the tech field, Google Inc. is now moving in on the art world.

The Mountain View-based company July 11 launched the “Paint the Town” contest, a “moving art experiment” that invites Califo...

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Sports

Pedaling with a purpose

Pedaling with a purpose


courtesy of
Rishi Bommannan Rishi Bommannan cycled from Bates College in Maine to his home in Los Altos Hills, taking several selfies along the way. He also raised nearly $13,000 for the Livestrong Foundation, which supports cancer patients.

When R...

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Comment

The truth about coyotes: Other Voices

The Town Crier’s recent article on coyotes venturing down from the foothills in search of sustenance referenced the organization Project Coyote (“Recent coyote attacks keep residents on edge,” July 1). Do not waste your time contac...

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Special Sections

Grant Park senior program made permanent

Grant Park senior program made permanent


Photos by Alicia Castro/Town Crier
Local residents participate in an exercise class at the Grant Park Senior Center, above. Betsy Reeves, below left with Gail Enenstein, lobbied for senior programming in south Los Altos.

It all began when Betsy Reev...

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Business

New State Street rug retailer has downtown Los Altos covered

New State Street rug retailer has downtown Los Altos covered


Alicia Castro/Town Crier
Los Altos Rug Gallery owner Fahim Karimi stocks his State Street store with a wall-to-wall array of floor coverings.

A new downtown business owner plans to roll out the red carpet – along with rugs of every other color –...

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Books

Book Signings

• Fritz and Nomi Trapnell have scheduled a book-signing party 4-6 p.m. Aug. 1 at their home, 648 University Ave., Los Altos.

Fritz and his daughter, Dana Tibbitts, co-authored “Harnessing the Sky: Frederick ‘Trap’ Trapnell, ...

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People

GRACE WILSON FRANKS

GRACE WILSON FRANKS

Resident of Los Altos

Grace Wilson Franks, our beloved mother and grandmother, left us peacefully on July 16, 2015 just a few weeks short of her 92nd birthday. She was born to Ross and Florence (Cruzan) Wilson in rural Tulare, California on Septem...

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Travel

Gearing up: Make travel more civilized with accessories

Gearing up: Make travel more civilized with accessories


Eren Göknar/Special to the Town Crier
San Francisco-based humangear Inc. sells totes, tubes and tubs for traveling.

In travel, as in romance, it’s the little things that count.

Beyond the glossy brochures lie the travel discomforts too mun...

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Stepping Out

Going out with a 'Bang'

Going out with a 'Bang'


Richard Mayer/Special to the Town Crier
“Chitty Chitty Bang Bang” stars, clockwise from top left, Alexander Sanchez, Sophia Sturiale, Deborah Rosengaus and Danny Martin.

Los Altos Stage Company and Los Altos Youth Theatre’s joint production of t...

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Spiritual Life

Build a 'light' house and get out of that dark place

Most of us have a place inside our hearts and minds that occasionally causes us trouble. For some, it is sadness, depression or despair. For others, it may be fear, anger, resentment or myriad other emotional “dark places” that at times seem to hij...

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Magazine

Inside Mountain View

Residents gather at NASA Ames for Pluto Flyby event

Residents gather at NASA Ames for Pluto Flyby event


Megan V. Winslow/Town Crier
NASA Ames’ Pluto Flyover event kindles the imaginations of young attendees.

Sue Moore watched the July 20, 1969, moon landing beside patients and staff members of the San Francisco hospital where she worked as a nurse...

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Rare cancer turns local resident into passionate advocate


Ellie Van Houtte/town crier
Los Altos resident Sarah Robinson, diagnosed with Stage 4 cancer two years ago, has organized a fundraiser to support Uterine Leiomyosarcoma research.

Sarah Robinson hopes to turn her medical battle into something positive for others.

The Los Altos resident, mother of two adult sons, has scheduled a fund- raiser for the LMSarcoma Direct Research Foundation 1-6 p.m. Sunday at Congregation Beth Am, 2670 Arastradero Road, Los Altos Hills.

Robinson, 54, told the Town Crier that the event is an extension of her advocacy on behalf of those afflicted with Uterine Leiomyosarcoma (ULMS), a rare tumor that develops in the muscular part of the uterus.

The Sarcoma Foundation of America (SFA) reports that approximately six out of 1 million U.S. women will be diagnosed annually with ULMS. Surgery is the primary therapy for those diagnosed with ULMS, which is resistant to chemotherapy, according to the SFA.

Grim diagnosis

Robinson’s efforts are the result of her own plight. Just shy of her 52nd birthday, she received a phone call that she had been diagnosed with Stage 4 cancer.

“It was the day before my birthday,” said Robinson, who until recently worked as an OB/GYN physician assistant. “It was kind of hard news to get over the phone.”

The “surprise diagnosis,” according to Robinson, came after she had undergone a laparoscopic hysterectomy, which included the use of a morcellator – a surgical tool that grinds up tissue with sharp rotating edges and extracts it from the body. Her doctors recommended the procedure after discovering that she had three uterine growths, one that enlarged from the size of an orange to a grapefruit within four weeks.

That large growth, originally diagnosed as a uterine fibroid, was a tumor. According to Robinson, the morcellator essentially “seeded” cancer cells throughout her body. Less than a year after the hysterectomy, Robinson said she now has three small growths on her lungs.

“It’s a very grim diagnosis. Just by doing (the morcellation) procedure, I’m now at Stage 4,” said Robinson, who declined to name the health-care provider who performed the surgery. “A lot of GYNs won’t see these throughout their entire careers –usually the average is zero to one (ULMS cases seen in a career).”

Robinson added that she asked – but was denied – the option of having a more traditional open surgery instead of the laparoscopy because her medical provider said she didn’t qualify for it.

“These types of things should be taken care of at a specialty center – at a sarcoma center,” said Robinson, who noted that 0.5 to 1 percent of women who undergo a hysterectomy due to a uterine fibroid end up with a ULMS diagnosis. “When you find a rare cancer, that’s where people should go.”

Looking ahead

Robinson conceded that while she’s still going through an “emotional process” in regard to her Stage 4 diagnosis, she’s also learned the importance of being her own health-care advocate. She found an entire community of those afflicted with ULMS through the Association of Cancer Online Resources (ACOR), where she met Sharon Anderson, originally diagnosed with the rare cancer in 2002.

A 55-year-old retired social worker, Anderson told the Town Crier that she knows Robinson’s story all too well. Although she also has been assessed at Stage 4 on the cancer scale, Anderson said she’s been tumor-free for seven years after she found a doctor through ACOR that treated her ULMS with a drug typically used by breast cancer patients. These days, Anderson advocates and offers a sympathetic ear to others afflicted with the disease.

“It’s extremely important to be your own advocate,” said Anderson, who often accompanies patients to medical appointments to help them understand their medical options and rights. “It’s not only for them, it’s for me, too. It’s my way of fighting for survival, too.”

Robinson said she doesn’t have time for what-if scenarios or negative thoughts. Instead, she chooses to focus her efforts on creating awareness and spreading knowledge of the rare disease to others. With this in mind, she noted that her advocacy work is “a continuation” of her 11-year career as a physician assistant.

“I love being a physician assistant and I love advocating for my patients,” said Robinson, who undergoes MRI exams and CT scans every three months to monitor the growths on her lungs. “It’s something that is very natural to me. It pains me to think that there are women who have to deal with this and, in some cases, also raise a family with little kids. That hurts. It hurts me a lot.”

Sunday’s fundraiser is one way Robinson hopes to make a difference. Guests attending the event – which includes a suggested $20 donation at the door – can enjoy food, wine and music while participating in a silent auction featuring certificates to restaurants, wine excursions and theater productions, among other packages.

“I’m trying to get out there and make a difference in this world,” she said. “I just don’t want this to happen to other women.”

For more information on Robinson’s fundraiser, call 245-1807.

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