Sat04302016

News

Loyola Corners economics, traffic rise to top of planning concerns

Loyola Corners economics, traffic rise to top of planning concerns

Alicia Castro/Town Crier
Loyola Bridge construction parallel to the Fremont Avenue frontage may lead officials to alter circulation plans for the area.

Loyola Corners stakeholders last week mulled the issues that will likely shape the area&rsquo...

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Schools

LAHS Green Team commemorates Earth Week

LAHS Green Team commemorates Earth Week


Traci Newell/Town Crier
Los Altos High School Green Team members, above, quiz their classmates about water conservation. The club distributed plants as prizes during the club’s Earth Week activities.

Members of the Los Altos High School Green...

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Community

Local pianist, 11, slated to perform Saturday at statewide competition

Local pianist, 11, slated to perform Saturday at statewide competition


Courtesy of the Cha family
Spencer Cha plays piano at a Santa Clara University recital. The sixth-grader also enjoys soccer, tennis, golf and skiing.

Spencer Cha has come a long way since he first sat down at the piano at age 2.

“I remem...

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Sports

Spartans net second place, eye top prize next season

Spartans net second place, eye top prize next season


Megan V. Winslow/Town Crier
Jeremy Hsu, Mountain View High’s top singles player, competes against Pinewood Thursday. The Spartans won the match 7-0.

With freshmen playing the top three spots in singles, the future of the Mountain View High boy...

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Comment

Los Altos at a leadership crossroads: Editorial

Don’t look now, but there could be some major changes ahead regarding how the Los Altos city government is run.

The current city council has the opportunity to hire a new city manager in the wake of Marcia Somers’ recent resignation. Fur...

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Special Sections

How to personalize the wedding bar

How to personalize the wedding bar


Christine Moore/Special to the Town Crier
A seasonal signature cocktail adds interest beyond the standard wedding bar’s spirits and mixers. Focus on one set of fresh ingredients, such as blueberries, blackberries and mint for a dose of budget...

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Business

Farmers prepare to market season's bounty

Farmers prepare to market season's bounty


Alicia Castro/Town Crier
Journeyman farmer Jen Friedlander waters Hidden Villa’s greenhouse plants, which will grow stronger in the controlled indoor environment before being transferred to the field outdoors.

Around Hidden Villa, the gree...

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People

BUOL JOANNE DOUGHERTY

BUOL JOANNE DOUGHERTY

1930-2016

Heaven gained a beautiful angel today. Our beloved mother’s blessed life ended in her Los Altos home surrounded by her loving family on April 18, 2016.

Buol Joanne Dougherty was born Sept. 28, 1930 in Chicago. At the age of two, M...

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Stepping Out

'Catch' comes to conclusion LA Stage Co. comedy  ends run this weekend

'Catch' comes to conclusion LA Stage Co. comedy ends run this weekend


Richard Mayer/Special to the Town Crier
Bryan Moriarty, left, stars as Yossarian and John Stephen King plays the Psychiatrist in Los Altos Stage Company’s “Catch-22.”

Los Altos Stage Company’s presentation of “Catch...

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Spiritual Life

Rare cancer turns local resident into passionate advocate


Ellie Van Houtte/town crier
Los Altos resident Sarah Robinson, diagnosed with Stage 4 cancer two years ago, has organized a fundraiser to support Uterine Leiomyosarcoma research.

Sarah Robinson hopes to turn her medical battle into something positive for others.

The Los Altos resident, mother of two adult sons, has scheduled a fund- raiser for the LMSarcoma Direct Research Foundation 1-6 p.m. Sunday at Congregation Beth Am, 2670 Arastradero Road, Los Altos Hills.

Robinson, 54, told the Town Crier that the event is an extension of her advocacy on behalf of those afflicted with Uterine Leiomyosarcoma (ULMS), a rare tumor that develops in the muscular part of the uterus.

The Sarcoma Foundation of America (SFA) reports that approximately six out of 1 million U.S. women will be diagnosed annually with ULMS. Surgery is the primary therapy for those diagnosed with ULMS, which is resistant to chemotherapy, according to the SFA.

Grim diagnosis

Robinson’s efforts are the result of her own plight. Just shy of her 52nd birthday, she received a phone call that she had been diagnosed with Stage 4 cancer.

“It was the day before my birthday,” said Robinson, who until recently worked as an OB/GYN physician assistant. “It was kind of hard news to get over the phone.”

The “surprise diagnosis,” according to Robinson, came after she had undergone a laparoscopic hysterectomy, which included the use of a morcellator – a surgical tool that grinds up tissue with sharp rotating edges and extracts it from the body. Her doctors recommended the procedure after discovering that she had three uterine growths, one that enlarged from the size of an orange to a grapefruit within four weeks.

That large growth, originally diagnosed as a uterine fibroid, was a tumor. According to Robinson, the morcellator essentially “seeded” cancer cells throughout her body. Less than a year after the hysterectomy, Robinson said she now has three small growths on her lungs.

“It’s a very grim diagnosis. Just by doing (the morcellation) procedure, I’m now at Stage 4,” said Robinson, who declined to name the health-care provider who performed the surgery. “A lot of GYNs won’t see these throughout their entire careers –usually the average is zero to one (ULMS cases seen in a career).”

Robinson added that she asked – but was denied – the option of having a more traditional open surgery instead of the laparoscopy because her medical provider said she didn’t qualify for it.

“These types of things should be taken care of at a specialty center – at a sarcoma center,” said Robinson, who noted that 0.5 to 1 percent of women who undergo a hysterectomy due to a uterine fibroid end up with a ULMS diagnosis. “When you find a rare cancer, that’s where people should go.”

Looking ahead

Robinson conceded that while she’s still going through an “emotional process” in regard to her Stage 4 diagnosis, she’s also learned the importance of being her own health-care advocate. She found an entire community of those afflicted with ULMS through the Association of Cancer Online Resources (ACOR), where she met Sharon Anderson, originally diagnosed with the rare cancer in 2002.

A 55-year-old retired social worker, Anderson told the Town Crier that she knows Robinson’s story all too well. Although she also has been assessed at Stage 4 on the cancer scale, Anderson said she’s been tumor-free for seven years after she found a doctor through ACOR that treated her ULMS with a drug typically used by breast cancer patients. These days, Anderson advocates and offers a sympathetic ear to others afflicted with the disease.

“It’s extremely important to be your own advocate,” said Anderson, who often accompanies patients to medical appointments to help them understand their medical options and rights. “It’s not only for them, it’s for me, too. It’s my way of fighting for survival, too.”

Robinson said she doesn’t have time for what-if scenarios or negative thoughts. Instead, she chooses to focus her efforts on creating awareness and spreading knowledge of the rare disease to others. With this in mind, she noted that her advocacy work is “a continuation” of her 11-year career as a physician assistant.

“I love being a physician assistant and I love advocating for my patients,” said Robinson, who undergoes MRI exams and CT scans every three months to monitor the growths on her lungs. “It’s something that is very natural to me. It pains me to think that there are women who have to deal with this and, in some cases, also raise a family with little kids. That hurts. It hurts me a lot.”

Sunday’s fundraiser is one way Robinson hopes to make a difference. Guests attending the event – which includes a suggested $20 donation at the door – can enjoy food, wine and music while participating in a silent auction featuring certificates to restaurants, wine excursions and theater productions, among other packages.

“I’m trying to get out there and make a difference in this world,” she said. “I just don’t want this to happen to other women.”

For more information on Robinson’s fundraiser, call 245-1807.

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