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News

LA Council race adds 3 new faces to city politics

LA Council race adds 3 new faces to city politics


The Town Crier chronicled the first election of Los Altos City Council incumbent Jarrett Fishpaw in 2010 and documented the Los Altos candidacy of Jean Mordo, who volunteered as a longtime public servant in Los Altos Hills before moving to the flat...

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Schools

St. Simon launches web-based learning management system

St. Simon launches web-based learning management system


Courtesy of St. Simon Parish School
St. Simon fifth-grader Matthew Cummins uses a laptop in class last week. The school’s cloud-based Schoology system boosts organization and collaboration.

Families at St. Simon Parish School in Los Altos laun...

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Community

Los Altos to celebrate 100 years of library use with 'Centennial Faire'

Los Altos to celebrate 100 years of library use with 'Centennial Faire'


Town Crier File Photo
The Los Altos main library is among the more popular branches in the county library district system, set to celebrate 100 years.

In 1914, Babe Ruth made his debut with the Boston Red Sox, wages hit $5 per day, the first ste...

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Sports

Eagles eye another stellar season

Eagles eye another stellar season


Ellie Van Houtte/Town Crier
Los Altos High outside hitter Carmen Annevelink, right, goes for the kill Thursday against Palo Alto, as teammates Sarah Tritschler, left, and Lulu Kishton prepare to play defense. The Eagles won the match in straight ga...

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Comment

Torok, Walter, Dave for MVLA board: Editorial

There’s really nothing major you can criticize about the Mountain View Los Altos Union High School District. It offers a diverse array of effective programs for all types of students. Its instructors, with few exceptions, are outstanding.

Howe...

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Special Sections

'Funabout' Fiat

'Funabout' Fiat


Photos courtesy of Fiat
The 2014 Fiat 500e uses 29 kilowatt-hours per 100 miles, which the engineers claim is the equivalent of 116 mpg of gas use. It has a sticker price of $33,095.

If you believe in climate change, would love to see alternat...

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Business

App developer eyes First Friday as testing ground

App developer eyes First Friday as testing ground


Ted Fagenson

An East Bay app developer is testing his newest creation in downtown Los Altos.

Ted Fagenson, co-founder of Skrownge (pronounced “scrounge”), told the Town Crier that he’s beta testing his mobile gaming app this week ...

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Books

From story to bookstore: Local journey highlights Halloween

From story to bookstore: Local journey highlights Halloween


Courtesy of Dee Ellmann
Jenny Hurwick self-published her picture book last month after decades of storytelling.

During her years working as a teacher and a Los Altos mom, Jenny Hurwick loved to tell stories. One tale she crafted for her son just se...

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People

VINCENT (TIM) MURPHY JR.

VINCENT (TIM) MURPHY JR.

July 27, 1953 – August 12, 2014

Native Los Altan died Medford, OR. Graduated Bellarmine Prep. Married Josephine Domino, 1950. Licensed Auto Mechanic, Private Pilot, skilled Computer Scientist. Tim “could fix anything”. Afflicted with cancer 2001. ...

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Travel

Taking a Turkey trek: Winging it during the World Cup

Taking a Turkey trek: Winging it during the World Cup


Rich Robertson/Special to the Town Crier
The sun sets over the Aegean Sea in Bodrum, Turkey, left.

Tours that whisk you from Istanbul to Bodrum in 11 days are as plentiful as souvenir hawkers in Turkey, but traveling from the Blue Mosque to Topkapi ...

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Stepping Out

'Gypsy' on its way out

'Gypsy' on its way out


Chris Berger/Special to the Town Crier
Alison Koch of Los Altos plays Dainty June in “Gypsy.”

This is the final weekend to catch the Sunnyvale Community Players production of “Gypsy” at the Sunnyvale Theatre. The musical is slated to close Sund...

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Spiritual Life

Ugandan pastor visits U.S. to raise support for children's ministry

Ugandan pastor visits U.S. to raise support for children's ministry


Ellie Van Houtte/Town Crier
Herman Lukwago educates children in Uganda.

Imagine life if your father had 25 children and you were raised in poverty in rural Uganda.

Now imagine that you and your siblings were orphaned at an early age and you ass...

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Magazine

Local events add color to autumn calendar

Local events add color to autumn calendar


Van Houtte/town crier Visitors make their way through the Children’s Alley.

As Los Altos’ signature Chinese Pistache trees exchange their summer green for vibrant hues of yellow, orange and red in the fall, an abundance of local events also ad...

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Rare cancer turns local resident into passionate advocate


Ellie Van Houtte/town crier
Los Altos resident Sarah Robinson, diagnosed with Stage 4 cancer two years ago, has organized a fundraiser to support Uterine Leiomyosarcoma research.

Sarah Robinson hopes to turn her medical battle into something positive for others.

The Los Altos resident, mother of two adult sons, has scheduled a fund- raiser for the LMSarcoma Direct Research Foundation 1-6 p.m. Sunday at Congregation Beth Am, 2670 Arastradero Road, Los Altos Hills.

Robinson, 54, told the Town Crier that the event is an extension of her advocacy on behalf of those afflicted with Uterine Leiomyosarcoma (ULMS), a rare tumor that develops in the muscular part of the uterus.

The Sarcoma Foundation of America (SFA) reports that approximately six out of 1 million U.S. women will be diagnosed annually with ULMS. Surgery is the primary therapy for those diagnosed with ULMS, which is resistant to chemotherapy, according to the SFA.

Grim diagnosis

Robinson’s efforts are the result of her own plight. Just shy of her 52nd birthday, she received a phone call that she had been diagnosed with Stage 4 cancer.

“It was the day before my birthday,” said Robinson, who until recently worked as an OB/GYN physician assistant. “It was kind of hard news to get over the phone.”

The “surprise diagnosis,” according to Robinson, came after she had undergone a laparoscopic hysterectomy, which included the use of a morcellator – a surgical tool that grinds up tissue with sharp rotating edges and extracts it from the body. Her doctors recommended the procedure after discovering that she had three uterine growths, one that enlarged from the size of an orange to a grapefruit within four weeks.

That large growth, originally diagnosed as a uterine fibroid, was a tumor. According to Robinson, the morcellator essentially “seeded” cancer cells throughout her body. Less than a year after the hysterectomy, Robinson said she now has three small growths on her lungs.

“It’s a very grim diagnosis. Just by doing (the morcellation) procedure, I’m now at Stage 4,” said Robinson, who declined to name the health-care provider who performed the surgery. “A lot of GYNs won’t see these throughout their entire careers –usually the average is zero to one (ULMS cases seen in a career).”

Robinson added that she asked – but was denied – the option of having a more traditional open surgery instead of the laparoscopy because her medical provider said she didn’t qualify for it.

“These types of things should be taken care of at a specialty center – at a sarcoma center,” said Robinson, who noted that 0.5 to 1 percent of women who undergo a hysterectomy due to a uterine fibroid end up with a ULMS diagnosis. “When you find a rare cancer, that’s where people should go.”

Looking ahead

Robinson conceded that while she’s still going through an “emotional process” in regard to her Stage 4 diagnosis, she’s also learned the importance of being her own health-care advocate. She found an entire community of those afflicted with ULMS through the Association of Cancer Online Resources (ACOR), where she met Sharon Anderson, originally diagnosed with the rare cancer in 2002.

A 55-year-old retired social worker, Anderson told the Town Crier that she knows Robinson’s story all too well. Although she also has been assessed at Stage 4 on the cancer scale, Anderson said she’s been tumor-free for seven years after she found a doctor through ACOR that treated her ULMS with a drug typically used by breast cancer patients. These days, Anderson advocates and offers a sympathetic ear to others afflicted with the disease.

“It’s extremely important to be your own advocate,” said Anderson, who often accompanies patients to medical appointments to help them understand their medical options and rights. “It’s not only for them, it’s for me, too. It’s my way of fighting for survival, too.”

Robinson said she doesn’t have time for what-if scenarios or negative thoughts. Instead, she chooses to focus her efforts on creating awareness and spreading knowledge of the rare disease to others. With this in mind, she noted that her advocacy work is “a continuation” of her 11-year career as a physician assistant.

“I love being a physician assistant and I love advocating for my patients,” said Robinson, who undergoes MRI exams and CT scans every three months to monitor the growths on her lungs. “It’s something that is very natural to me. It pains me to think that there are women who have to deal with this and, in some cases, also raise a family with little kids. That hurts. It hurts me a lot.”

Sunday’s fundraiser is one way Robinson hopes to make a difference. Guests attending the event – which includes a suggested $20 donation at the door – can enjoy food, wine and music while participating in a silent auction featuring certificates to restaurants, wine excursions and theater productions, among other packages.

“I’m trying to get out there and make a difference in this world,” she said. “I just don’t want this to happen to other women.”

For more information on Robinson’s fundraiser, call 245-1807.

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