Wed03042015

News

Council considers freezing First St. development

Council considers freezing First St. development


Megan V. Winslow/Town Crier
A pedestrian walks along First Street in downtown Los Altos last week. Future construction on the street could soon be barred by an emergency moratorium on development.

Further construction along First Street could be t...

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Schools

Former NFL player huddles with Blach students about life choices

Former NFL player huddles with Blach students about life choices


Ellie Van HOutte/Town Crier
Former NFL tight end Eason Ramson visited with Blach Intermediate School students, Feb. 13 to share the perils of drug use. Now a motivational speaker, Ramson works with at-risk teens in San Francisco.

Although former ...

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Community

Music for Minors partners with Harvard to expand efforts

Music for Minors partners with Harvard to expand efforts


Palmer

When the thriving Music for Minors began to outgrow its capacity, the local nonprofit organization made new friends.

Beginning in late February, Music for Minors – a Town Crier Holiday Fund recipient – partnered with Harvard Business Sch...

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Comment

Dangerous streets: A Piece of My Mind

I’m driving along El Monte Avenue between Foothill Expressway and Springer Road at approximately 6 p.m. on a midwinter evening. In keeping with the “village feeling” of our town, there are no sidewalks and no streetlights.

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Special Sections

Lions, lambs and Cab Franc for March

Lions, lambs and Cab Franc for March


Christine Moore/Special to the Town Crier
Oven fries, a slice of feta cheese and the bite of harissa mayonnaise make for a late-winter, early-spring dinner perfectly paired with Cabernet Franc.

I can’t help but wonder whether March will come in ...

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Business

Los Altos scientist named Inventor of the Year

Los Altos scientist named Inventor of the Year


Above Photo by Alicia Castro/Town Crier; Below Rendering Courtesy of SST inc.
Robert Showen, above, the Silicon Valley Intellectual Property Lawyers Association’s Inventor of the Year, began researching his ShotSpotter technology in his Los A...

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Books

French novel

French novel "Hunting and Gathering" offers character-driven suspense


Anna Gavalda is a well-known author in her native France, where she has published six books, most of which have met with considerable praise and commercial success. Her fourth novel, “Hunting and Gathering” (Riverhead Books, 2007), is filled ...

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People

HELEN KNOFLOCH

HELEN KNOFLOCH

Aug. 14, 1920 – Feb.12, 2015

Resident of Cupertino

Helen Knofloch, 94, loving wife and devoted mother passed away on Feb. 12th. She was born in Vienna, Austria and moved to Los Altos in 1949, where she met Andy, the love of her life. They resided...

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Travel

Seoul of the city: Korean capital offers mix of old and new

Seoul of the city: Korean capital offers mix of old and new


Ramya Krishna/Special to the Town Crier
Seoul’s Cheonggyecheon public recreation space, above, features an elevated pedestrian bridge.

Seoul, South Korea, is a study in contrasts. Having grown quickly, the city is a mix of old and new.

Using...

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Stepping Out

TheatreWorks jumps into ‘Lake’

TheatreWorks jumps into ‘Lake’


Kevin Berne/Special to the Town Crier
Jason Bowen, from left, Adam Poss and Nilanjana Bose star in “The Lake Effect,” opening this weekend at the Lucie Stern Theatre in Palo Alto and running through March 29.

The TheatreWorks production ...

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Spiritual Life

Is your thought life sabotaging your spiritual journey?

My computer started having problems – there seemed to be some sort of malware running in the background. At first it was just annoying, then it began to slow down my computer, interfering with its basic operations. What is it doing? Why can...

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Magazine

Local events serve up family fun

Local events serve up family fun


Courtesy of Peninsula Youth Theatre
Peninsula Youth Theatre’s production of “Pecos Bill: A Tall Tale” is slated to open March 20 in Mountain View.

For families seeking a break from the daily routine, events abound this month and next in Los Alto...

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Rare cancer turns local resident into passionate advocate


Ellie Van Houtte/town crier
Los Altos resident Sarah Robinson, diagnosed with Stage 4 cancer two years ago, has organized a fundraiser to support Uterine Leiomyosarcoma research.

Sarah Robinson hopes to turn her medical battle into something positive for others.

The Los Altos resident, mother of two adult sons, has scheduled a fund- raiser for the LMSarcoma Direct Research Foundation 1-6 p.m. Sunday at Congregation Beth Am, 2670 Arastradero Road, Los Altos Hills.

Robinson, 54, told the Town Crier that the event is an extension of her advocacy on behalf of those afflicted with Uterine Leiomyosarcoma (ULMS), a rare tumor that develops in the muscular part of the uterus.

The Sarcoma Foundation of America (SFA) reports that approximately six out of 1 million U.S. women will be diagnosed annually with ULMS. Surgery is the primary therapy for those diagnosed with ULMS, which is resistant to chemotherapy, according to the SFA.

Grim diagnosis

Robinson’s efforts are the result of her own plight. Just shy of her 52nd birthday, she received a phone call that she had been diagnosed with Stage 4 cancer.

“It was the day before my birthday,” said Robinson, who until recently worked as an OB/GYN physician assistant. “It was kind of hard news to get over the phone.”

The “surprise diagnosis,” according to Robinson, came after she had undergone a laparoscopic hysterectomy, which included the use of a morcellator – a surgical tool that grinds up tissue with sharp rotating edges and extracts it from the body. Her doctors recommended the procedure after discovering that she had three uterine growths, one that enlarged from the size of an orange to a grapefruit within four weeks.

That large growth, originally diagnosed as a uterine fibroid, was a tumor. According to Robinson, the morcellator essentially “seeded” cancer cells throughout her body. Less than a year after the hysterectomy, Robinson said she now has three small growths on her lungs.

“It’s a very grim diagnosis. Just by doing (the morcellation) procedure, I’m now at Stage 4,” said Robinson, who declined to name the health-care provider who performed the surgery. “A lot of GYNs won’t see these throughout their entire careers –usually the average is zero to one (ULMS cases seen in a career).”

Robinson added that she asked – but was denied – the option of having a more traditional open surgery instead of the laparoscopy because her medical provider said she didn’t qualify for it.

“These types of things should be taken care of at a specialty center – at a sarcoma center,” said Robinson, who noted that 0.5 to 1 percent of women who undergo a hysterectomy due to a uterine fibroid end up with a ULMS diagnosis. “When you find a rare cancer, that’s where people should go.”

Looking ahead

Robinson conceded that while she’s still going through an “emotional process” in regard to her Stage 4 diagnosis, she’s also learned the importance of being her own health-care advocate. She found an entire community of those afflicted with ULMS through the Association of Cancer Online Resources (ACOR), where she met Sharon Anderson, originally diagnosed with the rare cancer in 2002.

A 55-year-old retired social worker, Anderson told the Town Crier that she knows Robinson’s story all too well. Although she also has been assessed at Stage 4 on the cancer scale, Anderson said she’s been tumor-free for seven years after she found a doctor through ACOR that treated her ULMS with a drug typically used by breast cancer patients. These days, Anderson advocates and offers a sympathetic ear to others afflicted with the disease.

“It’s extremely important to be your own advocate,” said Anderson, who often accompanies patients to medical appointments to help them understand their medical options and rights. “It’s not only for them, it’s for me, too. It’s my way of fighting for survival, too.”

Robinson said she doesn’t have time for what-if scenarios or negative thoughts. Instead, she chooses to focus her efforts on creating awareness and spreading knowledge of the rare disease to others. With this in mind, she noted that her advocacy work is “a continuation” of her 11-year career as a physician assistant.

“I love being a physician assistant and I love advocating for my patients,” said Robinson, who undergoes MRI exams and CT scans every three months to monitor the growths on her lungs. “It’s something that is very natural to me. It pains me to think that there are women who have to deal with this and, in some cases, also raise a family with little kids. That hurts. It hurts me a lot.”

Sunday’s fundraiser is one way Robinson hopes to make a difference. Guests attending the event – which includes a suggested $20 donation at the door – can enjoy food, wine and music while participating in a silent auction featuring certificates to restaurants, wine excursions and theater productions, among other packages.

“I’m trying to get out there and make a difference in this world,” she said. “I just don’t want this to happen to other women.”

For more information on Robinson’s fundraiser, call 245-1807.

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